ALS Caregiver (RN/LVN or equivalent ALS experience)for ALS Morning & Evening Care — Oakland (Lake Merritt Area)
Hiring multiple caregivers for 7-day coverage $30 training rate → $45/hr once fully trained Live-in Option available (less hourly).
About Us
We are a family in Oakland (Lake Merritt area) supporting Casey — a climate strategist and an active participant in the BrainGate brain-computer interface (BCI) clinical trial. Learn more about him here: https://linktr.ee/caseyharrell. Casey has advanced (but very stable) ALS and requires consistent morning and evening skilled care. Our home is grounded in disability justice; autonomy; compassion; and calm, relationship-based caregiving.
We are building a stable, collaborative team who will work alongside:
A Personal Assistant we are also hiring for this position, see details here:https://forms.gle/jmUCGJnDxpXrueix5
Casey’s spouse (primary caregiver transitioning out of 24/7 care after 7 years)
An active community of care and researchers
Your role is essential to ensuring Casey can get up safely, start his day with stability, and/or get settled comfortably at night.
We are hiring multiple RNs/LVNs to create a sustainable 7-day schedule.
Position DetailsShift Structure
We are hiring 2–4 caregivers to cover:
Morning shifts: 3–5 hours typically 7:00 AM - 10:00 AM
Evening shifts: 5–8 hours typically 5:00 PM - 12:00 AM
You may take only AM, only PM, or both. or more hours as a live-in at $25-$30
We work together to build a balanced weekly schedule with backup coverage.
Compensation
Training rate: $30/hour (typically 2–4 weeks depending on comfort/competency)
Fully trained caregiver rate: $45/hour
Additional hours available for specialized tasks
Can pay through a combination of private pay + IHSS, W2 option also available
Responsibilities
You will provide skilled morning and/or evening care, including:
Morning routine (AM)
Physical Therapy
Catheter support
Hygiene (washing, advanced oral care, dressing)
Transfer with a ceiling lift
Support with respiratory equipment (Astral ventilator; training provided)
G-tube equipment and basic prep
Suctioning as needed
Supportive communication with daytime staff
Evening routine (PM)
Respiratory Physical Therapy (Vest, Cough Assist, Nebulizer)
Preparing and administering G-tube food (with pump) and meds (with syringe)
Toileting and catheter support
Transfer with a pivot board or ceiling lift
Setting Casey up for overnight stability
Dishes and laundry related to Casey's care
Teamwork
Coordinate with daytime assistants
Communicate clearly with the live-in support fellow
Manage the time to keep the schedule on track, communicate with others any updates to the schedule and when/if their assistance is needed
Provide concise notes and verbal updates to spouse caregiver
You Are Someone Who
Is an RN or LVN (active license in CA) or has equivalent ALS caregiving experience and open to learning tailored family approaches and preferences.
Has grit, humor, and hustle. Enjoys a challenging and sometimes changing work environment; can respond in emergency situations with a calm demeanor.
Precise and detail oriented in regards to medication management and prep, as well as the myriad micro-body and equipment adjustments an advanced ALS patient requires.
Skilled, pro-active, direct and patient communicator. Can go at Casey’s pace with his speech technologies, and wait for clear confirmed consent and directions before proceeding with anything.
Respects autonomy and works relationally, not clinically
Reliable, wants regular and long-term schedules and can give multiple days notice before taking time off.
(For evening shifts) can stay until Casey is fully ready for bed, has flexibility for occasional later nights.
Is LGBTQ+ friendly and anti-ablist.
Requirements
IHSS certified OR willing to complete the certification process
Able to work at least 2 consistent shifts per week
Comfortable with G-tube and catheter care (or willing to train)
Comfortable with “hands on” toileting support
Comfortable with respiratory equipment (training provided)
Able to lift, transfer, and assist safely with adaptive equipment
How to apply: Please fill out our application form here: https://forms.gle/PqWruPjAPRkJz2yL9
Only applicants we are interested in will be responded to. We will start with a video interview and then proceed with a paid trial if you are selected. Applications are open until all shifts are filled.